Thursday, February 11, 2010

Udpate

Some days when I am just barely getting by I get a little reminder that I'm not as alone as I feel. Thanks for remembering this appointment day. It has been a doozy! I woke up early and headed out with Chris only to realize I forgot his MRI films. Luckily Dennis was able to drive it over to the hospital for us. It was a few hour appointment. We went over history and symptoms and all that jazz. Christopher then took some tests while I waited in the lobby forever. She told us basically that we should have been there much sooner. Why didn't any doctors get him there? I felt so guilty. I just kept doing what I was told. He is one of the only 3% of people that have post concussion syndrome. His brain has just not healed. He tested very low in all areas he was tested on today. He even scored only 2% for visual memory. That means reading is totally pointless. It explains why he forgot he left my car at the school or that he even had my car. I thought it was stolen and he had no idea where it was. It's all making so much sense. It also explains why he comes home from school so frustrated. He says that he has to read a paragraph 20 times and still can't remember what he read. They feel lack of sleep may be playing a role in why his brain isn't healing. He is supposed to get a certain amount of sleep this week. I have to chart it. No late nights at all. He can't do any activities. Not even swim. He is supposed to rest that brain and go back on Wednesday to take the same tests and see if there is any improvement. I went to the school with my notes from the doctor on what accommodations he would need for a while. He is mortified. He told me with tears in his eyes that he feels retarded. He feels so inadequate. His anxiety has been so bad that I made him a counseling appointment next week so he can deal with his emotions. Another symptom in 100% of Post concussion syndrome patients is depression. Just what he needs. His emotional and physical well being are all affected and he feels so lost. My heart breaks for that boy. How do you make a teenage boy realize it doesn't matter what anyone thinks. Teenagers are not as compassionate or understanding as adults and they can be pretty thoughtless. He is also over sensitive lately and irritable. He would be quite mad that I even wrote this in my blog. I now have more questions than answers and I will be armed with my long list I am accumulating. So, my next update on this will be Wednesday after his appointment. Another thing that we just found out and have been dealing with is my mom. She was referred to a cardiologist last week. I went with her for one of her tests. She has a serious heart condition. They say her heart could just stop at any time. She is doing more tests throughout the next couple weeks and they should have a game plan after that. It is apparently something with her electrical system of the heart. It jumps all around and is highly irregular in it's beating. I saw it on the echo cardiogram and it was truly jumping all over the place. She is wearing a monitor right now. I know she is scared and I wish I knew what to do to help her. I wish I knew how to help Chris or Emily for that matter. I feel helpless. I feel overwhelmed and I just pray that Heavenly Father will make up the difference because I am falling short all over the place! Some fun things that have gone on lately are a super fun western dance Chris went to at school.
Emily had a late over with a friend and they just so happen to be wearing the same jammies! This made her very excited.

Joseph at the science fair. Two super cute neighbors just happened by while I was taking this photo. Tomorrow is the day he has been waiting for. The Valentine's Dance. I have signed up to be the photographer, as to not miss a single second of his first dance with a girl. I cannot wait to post those pictures tomorrow. I have to savor the good moments as they come.

8 comments:

Abby said...

Oh Mindy. Why does it feel like that when it rains, in pours? I don't understand it. But I'm impressed with your ability to rely on the Lord to make up the difference.

Cyndi said...

I've been thinking about you all week and hoping everything was going well with Chris. I'm so sorry he's having so much trouble. I'm sorry about your mom too. I wish that there was some way I could help it all go away. Just know you are in my thoughts and prayers and I love you a ton!

Jaime said...

Don't worry about falling short. We all do, and we will so we will learn to rely on the Lord and feel His miracles. You and your family are loved.

Unknown said...

We love you all so much. Thanks for being the best example to me. You are such a wonderful, compassionate person.
Love you!

Teri said...

Sorry.....that comment with Spencer's name is really from me!!

lindseyfrancom said...

I'm glad you updated... I have been anxiously awaiting this and have been praying dilegently for you and your family. Hang in there, we will all continue to pray for you Mindy. And, at least you are getting help NOW rather than later for both your mom and Chris.

Tonia said...

Keeping you and your family in our prayers and thoughts. Life really at times just isn't fair. Love ya.

Cory said...

I am praying for you and your family.